11-09-2024, 07:08 AM
(22-08-2024, 10:47 PM)Alexis P Wrote: Happy to see you are doing better Lotus, I was worried about you not posting for more than a month.
The mention of MS or dementia quite scared me, if you feel better feel free to message me at any time.
Hi Alexis, well… my CML (chronic myeloid leukemia) went from 32% in april to 94%. The test is called the BCR-ABL1, it checks (usually) 500 blood cells and gives a percentage of cancer cells. In my latest test (in August) 94% of my cells tested were cancer cells. That's up from 32% in April of this year and 84% when I was first diagnosed. When I first tested positive for leukemia my blood cells were 84%, and I was a mess. Now, lol… I'm worse.
On a side note (funny story) I asked my oncologist for pain meds for the leukemia pain… which most cml patients describe having bone pain. Mind you I've been told many times in the past and I quote “pain meds are only for cancer patients”… lol, right. My oncologist proceeds to inform me she only prescribes pain when you're dead, I mean near dead. But not less than 5 minutes earlier the oncologist said I'll be dead in 2yrs if I don't respond to the treatment plan. Haha, well… It's been one year now and I'm worse off than I started off at. Oh well, that's gatekeepers for yah.
So, if you don't hear from me for a period of time means I'm dealing with unrelenting pain and migraines. Apologies in advance.