16-02-2015, 08:33 PM
Well things are moving along medically. I now have a referral to the specialist in Portland for the MAC Infection (no appointment yet). I know they are going to push me to only take the meds (for a year), while I am going to push them to do a lung resection and a shorter course of meds (6 months). It's going to be a contest of wills and one I intend to win. My argument will be simple. My way or no way. And then walk out if they refuse to accept my terms.
This is after all my body. I'll accept only the treatment I personally feel is in my best interest based on my now insanely extensive research into this disease and no other options will be considered. If they don't like it, then they can piss off and I'll go about my life w/o their input as I normally do. Yes.. I am a difficult patient because I do my research. I question and I challenge my doctors and don't take their smarmy 'I'm the doctor' attitude as the end all and be all of the universe.
~Elain
This is after all my body. I'll accept only the treatment I personally feel is in my best interest based on my now insanely extensive research into this disease and no other options will be considered. If they don't like it, then they can piss off and I'll go about my life w/o their input as I normally do. Yes.. I am a difficult patient because I do my research. I question and I challenge my doctors and don't take their smarmy 'I'm the doctor' attitude as the end all and be all of the universe.
~Elain