[ElainMoria]

I'd like to take a couple minutes to thank everyone for their kind words, helpfulness, and encouragement. I'm very grateful that this community is so welcoming, accepting and dare I say... loving. Right now I will admit to being scared seven ways sideways about what is going on in my body. More because getting any information out of my doctors is like trying to pry a nut away from a squirrel.

When the culture results came back, nobody bothered to call me and let me know about them I had to call them and demand answers (SkyLakes has a patient resource that lets you see test results etc as they are released). It's frustrating because while I sit here and stress, they don't think even a little information is worth giving to me unless I start screaming at them. I had to threaten them with calling the CDC just to get them off their butts to do tests to see if the lesion in my lungs was active TB or not.

I'm def going to chew my doctors new rear ends on this subject and let them know that ignoring a patient and not giving them even the courtesy of a call to say "we still don't know what is going on but we are working towards finding out" is the least they can do rather than leave their patient to worry and stress w/o any information at all.

You guys have been incredibly supporting and friendly through this with me. I am very glad I found this forum when I did. Thanks for letting me rant, reveal my fears and helping me with information on NBE. Lotus.... your posts still make my head swim but I am starting to gain a clue... sorta... almost... crap, it got away again....

~Elain