[Happyme]

Beautifully done Alexis
Maybe you dont say much but when you do its from the heart, and over the top.
I think you have captured what Lotus means to all of us, for sure Myself.
I wish there was something more for us to do to help her, beside pray and pray.
Bobbi

[Stevenator_]

Very Nice Post, Alexis.
I agree with Bobbi.
Thank you.

[Lotus]

Hi BN, I thank everyone (p_r_1974, Aria, Shirazm, LizW55, Lara, myboobs, Jennifer, ChuckM, Alexis, Bobbi and Stevenator) from the bottom of my heart who stopped by to share their love and support. 

I'll try to give an update of how things are going. I spent three days in the hospital (a couple of days ago)... my blood pressure was spiking between 40 to 60 points. When the readings were going over 210/100 (and higher) it was time to go to the emergency department. Along with the high BP I was wheezing, migraines and having uncontrolled coughing. About two weeks ago I had an EKG (electrocardiogram) and it revealed a past heart attack (myocardial infarction). When I got to the hospital my BP was over 200/89, (essentially i was having a hypotensive crisis) they immediately took me back to an exam room and a few hours later admitted me to the hospital. Over the next few days they ran just about every blood/chest x-ray/mri test you can think of. 

My immune system is compromised as a result of having leukemia, and taking the cancer treatment medication lowers your immune next to nothing. Then I got sick (of course) with a virus, which then led to bronchitis (still have it) 

This next part is truly amazing, after everything I was going through (which I thought was close to having a heart attack) all heart related tests came back normal… I was stunned (and two more EKG's and an echocardiogram showed no history of a heart attack). 

My issue continues to be with the medication I take to fight the cancer. It's called Gleevec, some may refer to it as a chemo med, but it's actually a TKI (tyrosine kinase inhibitor) which attacks the cancer cells. I'm having negative reactions to the medication like coughing, wheezing, headaches, unrelenting fatigue and pain. My oncologist says the medication is essential for saving my life (she says over and over) like somehow I have forgotten this is life-threatening, and I have less than two years if I'm (somehow) unable to get treatment from the medication. I've asked repeatedly to try another medication, but I get denied and get the above lecture. The oncologist says all cancer drugs come with side-effects, but dang… this one seems like it's out to get me. 

I have more things to update, but I'll do that soon, I tire easily. If I can say one thing to you (or anyone else) who feels intimidated to talk to me please don't be. I'd like to talk less about science and more about life, and maybe get to hear from anyone who just wants to say hi… or talk about things. I may not respond in a timely manner, but I'll do my best. Alexis, your post was/is beautiful, it was posted on the day I was released from the hospital, so thank you so much, it lifted my spirits at a time when I needed it.  

I do feel incredibly lucky for a number of reasons, and for having great friends here. There are many more people who have things worse than me… but hey, I just found out my heart is healthy, imho that's fate. 

[p_r_1974]

You are most welcome love! I am overjoyed with the news about the lack of the M.I., and that you have been released from the hospital!

Perhaps a second opinion from a doctor that knows how intelligent a woman you are, and may explain the why of this medication (my opinion) without assuming you are a child crying foul without reason.

Your empathy, giving nature, your extensive knowledge, and more have allowed me to open more with you than I normally would. Some of the extremely intelligent individuals, doctors included, that I have interacted with have this air about them that their knowledge grants then a pass on being a aloof. My experience with you, and how I have seen you react with others is the exact opposite!

Safe travels, and a smooth recovery dear one!
(spelling)

[HelloDiDi]

Hey Lotus, glad to hear there's some good news and its not all bleak. And ditto about cancer meds being nasty stuff, kinda weird why not try something else as these days there should be (?) alternatives. At least my musician friend who has been sick with lymph node cancer twice mentioned that his doctors did a whole lot of shuffling and wondering about which meds to have him on as there were some choices. He made it surprisingly easy and has been cancer free for quite some time now, apparently the meds he had were great, I think he told about it being some brand new stuff which is easier for the body in general.

I hope you will have energy to post some time, I would have plenty to talk about on NBE and what not. I could write email some time, do you still use the same as before?

Get better soon.

[happyfeet]

Here in the states it's been found ivermectin can cure certain types of cancer mostly non tumorous 
I know so much stuff has been going around about what to believe and what not to that it's hard to trust anything. But it's well worth the reading if you want, hope this might help. Again I'm not a dr but as  much medical knowledge as you have this might oright not make any sense.

[myboobs]

Glad to hear your update. You are a very strong person with extensive knowledge and research. Maybe you could show these guys some research papers and seek an opinion . If I am brave enough to say that people on this forum have utmost respect and love for you . I for one have you in my prayers and speedy recovery. 

As you are a herbs master , I hope you have looked up my suggestions.

[Mashtenn]

Lotus it’s so good to hear from you and that you’re battling your cancer. Always thinking about you and remembering you in my prayers. Looking forward to more updates.

[SweetO]

Lotus!!

We are praying for you! Hang in there 

[DDs_for_me]

Thanks for the update!!!



Wishing you the best in this trying time!

Hugs!

~H